John Davidson (activist)

John Davidson
Born1971 or 1972 (age 54–55)[1]
EducationGalashiels Academy
OccupationCampaigner
Years active1989–present

John Davidson (born 1971 or 1972) is a Scottish campaigner for Tourette syndrome.[2] At age 16, Davidson was the subject of the BBC TV documentary John's Not Mad (1989) about the manifestations of Tourettes with which he lived. There have been a number of BBC follow-up documentaries throughout his life,[3][4][5] as well as a film biopic entitled I Swear (2025).[6]

Davidson is a "nationally known ambassador for the Tourettes condition",[1] who gives talks and workshops for school pupils and teachers, and has organised an annual two-day residential Tourette camp for young people. In 2019 he was appointed an MBE in recognition of "his efforts to increase understanding of the condition and helping people deal with it across the country."[2]

Biography

Early life and documentary subject

Davidson's condition encompasses a range of symptoms, including tics, coprolalia, echolalia, sudden and violent body movements, along with severe obsessive–compulsive disorder (OCD).[7] At age 16 a BBC TV documentary was made about him, John's Not Mad (1989), which "became a major talking point" nationally.[7]

In 2004, The Times reported that "Davidson occupies a position in the psyche of 1980s schoolchildren similar to that of Joey Deacon, who had cerebral palsy, for the kids of the 1970s. Both were the subjects of serious television programmes about their disabilities, and both promptly became the victims of nationwide playground mocking campaigns."[8][7] A follow-up BBC TV documentary was made about him at age 30, The Boy Can't Help It (2002), and another, Tourettes: I Swear I Can't Help It (2009), caught up with him at age 37.[9]

Career and advocacy work

After leaving school at age 16 without qualifications,[7] Davidson has worked his whole life as a caretaker at Langlee Community Centre in Galashiels.[7][10][11] He has also done a lot of voluntary youth work. As of 2002 he was a part-time youth leader at Langlee Community Centre and education complex in Galashiels.[11]

Since the broadcast of John's Not Mad, Davidson went on to become a "nationally known ambassador for the condition",[10] "a spokesman for this previously hidden neurological disorder, campaigning to educate people about it."[7] In 2003 he founded a Borders support group aimed at helping the families of those with the condition.[12]

Working with support groups such as Tourette Scotland and national organisation Tourettes Action he has visited schools, given talks,[13] and held workshops on living with Tourette syndrome,[9] and spoken to groups of police and school teachers on supporting people with the condition. He has organised an annual two-day residential Tourette camp for young people in Galashiels:[12][10]

"People who feel isolated in their own town can come to Galashiels for a weekend and feel part of a like-minded tribe," said John. "They can shout as loud as they like without worrying about upsetting or offending others. Hopefully, they return to their homes in better fettle and feeling stronger and less isolated."[10]

As of 2019 he was a board member of Tourette Scotland.[14] In 2019, he was appointed an MBE in recognition of "his efforts to increase understanding of the condition and helping families deal with it across the country."[2][15][16] He has also been a leading member of Borders Action Group, campaigning to save public services.[11]

I Swear and the BAFTAs

The biographical film I Swear, directed by Kirk Jones, was announced in 2024, with Robert Aramayo to play Davidson.[17] It came to cinemas in 2025.

In 2026, during the 79th British Academy Film Awards, Davidson's tics were audible in the auditorium and in the televised footage, including shouting the slur "nigger" while black actors Michael B. Jordan and Delroy Lindo presented the award for Best Special Visual Effects. This later prompted ceremony host Alan Cumming to apologise for any strong language heard throughout the broadcast, though he thanked the audience for their understanding of Tourette's. Davidson removed himself during the second half of the ceremony.[18]

Actors Jamie Foxx and Wendell Pierce condemned the moment on social media. Pierce deemed it "infuriating that the first reaction wasn't complete and full throated apologies to Delroy Lindo and Michael B. Jordan", and Foxx claimed Davidson "meant that shit" and called the moment "unacceptable."[19] Lindo stated that he and Jordan "did what [they] had to do" while presenting, but that he wished "someone from BAFTA spoke to us afterward".[20] Production designer Hannah Beachler alleged that Davidson had directed racial slurs at her, saying that it was an "almost impossible" situation while criticizing Cumming's "throwaway apology".[21] The BBC apologised for not editing the incident from their broadcast of the ceremony, which was shown on a two-hour delay.[22]

Following the ceremony, Davidson issued a public statement saying he was "deeply mortified if anyone considers [his] involuntary tics to be intentional or to carry any meaning" and reiterated that his vocal tics are involuntary.[23]

Films

  • John's Not Mad (1989) – Q.E.D. series, by Valerie Kaye, broadcast on the BBC One. Features Davidson.
  • The Boy Can't Help It (2002) – directed by Min Clough, produced by Todd Austin, broadcast on BBC One.[24] Features Davidson and Greg Storey.[25]
  • Tourette de France (2007) – Only Human series, broadcast on Channel 4. Includes Davidson and Keith Allen.[9]
  • Tourettes: I Swear I Can't Help It (2009) – Q.E.D. series, directed and produced by Philippa Robinson, executive produced by Todd Austin, broadcast on BBC One.[4][26] Features Davidson and Storey.[25]
  • Tourettes & Me (2014) – Prospect Cymru film for BBC One, catching up with John Davidson and Greg Storey 12 years on from The Boy Can't Help It[27]
  • Tourette's: Teenage Tics (2016) – by Min Clough and Todd Austin, broadcast on BBC One.[28][29] Features Davidson, Storey, Angela Scanlon, Rory Brown and Paul Stevenson.[30]
  • I Swear (2025) – directed by Kirk Jones, produced by CrossDay Productions and Tempo Productions. Stars Robert Aramayo as John Davidson.[17]

References

  1. ^ a b Keddie, Andrew (16 January 2017). "Tourette's documentary 'the best so far' says inspirational John". Border Telegraph. Retrieved 8 August 2022.
  2. ^ a b c "Meeting the Queen when you've got Tourette's". BBC News. 10 July 2019. Retrieved 25 February 2020.
  3. ^ Wark, Penny. "John's not mad. He's fine". The Times. ISSN 0140-0460. Retrieved 25 February 2020 – via www.thetimes.co.uk.
  4. ^ a b McIver, Brian (23 May 2012). "Tourette's sufferers hope film will help dispel myths of condition". Daily Record. Retrieved 25 February 2020.
  5. ^ "He swears hes happier". The Times. ISSN 0140-0460. Retrieved 10 March 2020 – via www.thetimes.co.uk.
  6. ^ McKenna, David (23 February 2026). "'Phenomenal' Bafta winner Robert Aramayo hailed an inspiration". BBC News.
  7. ^ a b c d e f "What happened to the boy with Tourette's?". 28 May 2009. Retrieved 25 February 2020 – via news.bbc.co.uk.
  8. ^ Wark, Penny (31 March 2004). "John's Not Mad (E)". The Times. ISSN 0140-0460. Retrieved 25 February 2020 – via www.thetimes.co.uk.
  9. ^ a b c "BBC documentary to focus on Tourette's friendship in the Borders". Border Telegraph. 21 December 2016. Retrieved 25 February 2020.
  10. ^ a b c d "Tourette's documentary 'the best so far' says inspirational John". Border Telegraph. 16 January 2017. Retrieved 8 March 2020.
  11. ^ a b c Khan, Stephen (3 March 2002). "Tourette's sufferer rails against cuts". The Observer. ISSN 0029-7712. Retrieved 25 February 2020 – via www.theguardian.com.
  12. ^ a b "Calls going out for reward for Borders Tourette's campaigner's work". www.thesouthernreporter.co.uk. Retrieved 11 March 2020.
  13. ^ "Borderers are rewarded by the Queen in the New Year Honours List". www.thesouthernreporter.co.uk. Retrieved 11 March 2020.
  14. ^ Chalmers, Robbie (22 January 2019). "Tourette charity hope to set up local group". dailyrecord. Retrieved 10 March 2020.
  15. ^ "Scot's Tourette's struggle to become film". www.scotsman.com. Retrieved 25 February 2020.
  16. ^ "Sworn allegiance". www.scotsman.com. Retrieved 25 February 2020.
  17. ^ a b Yossman, K. J. (27 August 2024). "'Rings of Power' Star Robert Aramayo Set as Lead in Kirk Jones' Tourette's Biopic 'I Swear' (EXCLUSIVE)". Variety.
  18. ^ Yossman, K. J. (22 February 2026). "BAFTAs Host Alan Cumming Asks for 'Understanding' as Tourette Syndrome Campaigner John Davidson Shouts 'Strong Language' and Slurs at Winners and Presenters". Variety. Retrieved 22 February 2026.
  19. ^ Pulver, Andrew (23 February 2026). "Backlash mounts to Bafta N-word controversy as Jamie Foxx and Wendell Pierce criticise outburst". The Guardian. ISSN 0261-3077. Retrieved 23 February 2026.
  20. ^ Ross, John (23 February 2026). "Outcry Roils BAFTAs After Guest With Tourette Syndrome Shouts N-word at Michael B. Jordan and Delroy Lindo". Vanity Fair. Retrieved 23 February 2026.{{cite web}}: CS1 maint: url-status (link)
  21. ^ Knapp, J. D. (23 February 2026). "'Sinners': Delroy Lindo, Hannah Beachler Speak Out After BAFTAs Tourette N-Word Incident". TheWrap. Retrieved 23 February 2026.
  22. ^ McIntosh, Steven (23 February 2026). "BBC sorry for airing racial slur shouted by guest with Tourette's at Baftas". BBC News. Retrieved 24 February 2026.
  23. ^ Goldbart, Max; Ntim, Zac (23 February 2026). "John Davidson Says He Is "Deeply Mortified" That His Tourettes Tics Could Be Seen As "Intentional" In First Statement After BAFTA Film Awards". Deadline. Retrieved 23 February 2026.
  24. ^ "The Boy Can't Help It (2002)". BFI. Archived from the original on 25 February 2020. Retrieved 25 February 2020.
  25. ^ a b Collins, Robert (27 May 2009). "The One to Watch: Thursday 28 May". The Daily Telegraph. ISSN 0307-1235. Retrieved 25 February 2020 – via www.telegraph.co.uk.
  26. ^ "BBC One - Tourettes: I Swear I Can't Help It". BBC. Retrieved 25 February 2020.
  27. ^ "Tourettes & Me – DCD Rights".
  28. ^ "Sky l Vision – Sky's production and distribution arm". skyvision.sky.com. Retrieved 25 February 2020.
  29. ^ "BBC Three - Tourettes: Teenage Tics". BBC. Retrieved 25 February 2020.
  30. ^ "What is my movie? - Item". www.whatismymovie.com. Retrieved 9 March 2020.